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Category Archives: Living With A Brain Disorder

Patients Creating Meaningful Solutions for their Own Disease

We live in a time of transformation in the way scientific breakthroughs are created. Or more correctly, we all feel like it is time we will be living in times in which there is a transformation in the way scientific breakthroughs are created. People are more informed then ever and the free flow of information […]

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Interview with Toni Alika Hickman – Songwriter, Singer, Stroke Survivor

Toni Alika Hickman is not only a talented singer-songwriter; she is the survivor of two brain aneurysms and a stroke. Born in New York, raised in New Orleans by the streets and a single mother who both worked and went to school, she was on her own at the age of 15. Writing poetry was […]

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Communicating with ALS One Blink at a Time

In their new book One Blink at a Time, Ismail and Cheryl Tsieprati share how they teamed up and overcame each and every challenge ALS placed before them. Ismail has lived with ALS for more than thirty years. His wife, Cheryl, has been challenged over the years to build, train and maintain a reliable and […]

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Living with Schizoaffective Disorder – A Personal Story

Being diagnosed with schizoaffective disorder was a real blow. I felt alone. I felt helpless. I felt my life had ended. I can’t tell you how many times I sat in a bathtub staring at the vein in my arm, wondering how much it would hurt to cut through the skin, or how frightened I’d […]

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Denial – An Unorthodox Strategy For Coping With Cancer Diagnosis

Six-and-a-half years ago I was officially cured of brain cancer — specifically, a glioblastoma multiforme, the most lethal of brain tumors. GBM, as it’s known, has a median survival rate of one to two years. According to the Journal of Neuroepidemiology, a “population-based cure is thought to occur when a population’s risk of death returns […]

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5 Things I Learned About Serious Mental Illness While Caring for My Brother

Over the past year since I published my memoir about caring for my brother Paul, who suffered from schizophrenia, I have encountered several misguided but firmly held beliefs that get in the way of understanding our fellow humans who suffer from a severe brain disorder. Here are just a few. 1. Probably the most common […]

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Scholarship for College Students Living with a Neurological Disorder

Bella Soul is a charity that empowers college students faced with chronic illness, physical disabilities, and disease through scholarships and emotional support. I have partnered with them to serve on and advise their scholarship committee on a voluntary basis. Their First Annual Luke G. Neurological Scholarship will award $500 to $1,000 to full-time students enrolled […]

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